https://www.PR.com/ Latest news releases from PR.com for FOXG1 Research Foundation. Sun, 16 Aug 2026 03:10:55 -0400 © 2026 PR.com 60 en-us https://www.PR.com/images/logo_white.jpg https://www.PR.com/ 68 69 PR.com provides press release distribution, and is a unique directory of businesses, products and services. Find full company profiles. https://www.pr.com/press-release/949746 Mon, 29 Sep 2025 14:34:00 -0400 The FOXG1 Research Foundation announced the FDA has granted Orphan Drug and Rare Pediatric Disease designations to FRF-001, its gene therapy for FOXG1 syndrome. FRF-001 marks a historic first: a parent-led foundation sponsoring its own international, multi-site clinical trial. [PR.com] https://www.pr.com/press-release/949746 FOXG1 Research Foundation https://www.pr.com/press-release/924479 Mon, 04 Nov 2024 08:20:00 -0500 The FOXG1 Research Foundation, the parent-led organization that is radically transforming the rare disease drug development landscape, is hosting an international conference in Fort Lauderdale from November 15-17, bringing families from across the globe together to learn about gene therapy advancements for FOXG1 syndrome. A highlight includes a presentation by 20-year-old Abraham Weitzman, who, though non-speaking, shares [PR.com] https://www.pr.com/press-release/924479 FOXG1 Research Foundation https://www.pr.com/press-release/913540 Mon, 10 Jun 2024 16:55:00 -0400 New publication shows groundbreaking result in FOXG1 AAV9 gene therapy studies, rescuing structural brain abnormalities caused by the pediatric rare disease, FOXG1 syndrome. This paper summarizing work done by the FOXG1 Research Center, led by Dr. Soo-Kyung Lee, Dr. Jae W. Lee and Dr. Kathrin Meyer (responsible for the SMA gene therapy), shows remarkable rescue of brain abnormalities using AAV9 gene therapy. [PR.com] https://www.pr.com/press-release/913540 FOXG1 Research Foundation https://www.pr.com/press-release/893360 Sat, 12 Aug 2023 03:00:00 -0400 The FOXG1 Research Foundation (FRF), a parent-led rare disease patient organization focused on driving therapeutics for FOXG1 syndrome, an Autism-related neurological condition, announced today the appointment of Dr. Soo-Kyung Lee as the new Chief Scientific Officer of the FOXG1 Research Foundation (FRF). Dr. Lee’s dedication to curing FOXG1 syndrome is deeply personal as a mother to Yuna, diagnosed with FOXG1 syndrome [PR.com] https://www.pr.com/press-release/893360 FOXG1 Research Foundation https://www.pr.com/press-release/854553 Wed, 09 Feb 2022 12:51:00 -0500 The FOXG1 Research Foundation, the rare disease patient organization that is driving the science to find treatments for FOXG1 syndrome, will be presenting at the BIO CEO & Conference on February 14 to discuss Tapping into Therapeutic Development for Rare CNS Disorders. Dir. of Science, Hourinaz Behesti will discuss why FOXG1 is a viable target for biotech investment, and the suite of assets that the FRF has developed and [PR.com] https://www.pr.com/press-release/854553 FOXG1 Research Foundation