San Francisco Woman’s Fifth Half Marathon Retires her from Inspirational Running Career
Despite living with a chronic neurological disorder, Carrie Siu Butt has finished over 15 races for Dystance4Dystonia. The Dystonia Medical Foundation (DMRF) is proud to cheer on Dystance4Dystonia runner Carrie Siu Butt in her fifth and final half marathon this November. Dystonia is a neurological disorder, and Carrie has served for years as a tireless inspiration for the dystonia community through her advocacy and passion for running. - September 20, 2013
Cincinnati Zoo Walk Raises $10,000 for Dystonia Research
The Dystonia Medical Research Foundation (DMRF) commends the support seen this past weekend the Cincinnati Zoo Walk. Over 200 supporters came to help raise over $10,000 and awareness for dystonia on Saturday, September 14, 2013. Organizer Melissa Phelps planned the walk in honor of her two young daughters, both of whom suffer from generalized dystonia, a little known movement disorder. - September 20, 2013
Cleveland Zoo Walk: A Chance to Continue the Fight Against Dystonia
The Dystonia Medical Research Foundation (DMRF) will welcome supporters to a fun day at the Cleveland Metroparks Zoo for a chance to raise funds and awareness for dystonia on Saturday, October 5, 2013. Organizer Karen Flanagan considers herself many things: a daughter, a sister, an aunt, and a... - September 11, 2013
Rochester Native Organizes Cornhole Tournament to Bring Awareness to Son’s Neurological Disorder
The Dystonia Medical Research Foundation (DMRF) is teaming up with the Cornhole League of Rochester to hold the largest Cornhole tournament in the Western New York region on Saturday, September 28, 2013, in the outfield of Frontier Field, Rochester's Triple-A Ballpark and home of the Red Wings. Rochester native, James Metherell and his wife Cassie are organizing the tournament in honor of their oldest son Caleb, who is diagnosed with a childhood form of dystonia. - September 06, 2013