South Bend, IN, August 25, 2014 --(PR.com
)-- HRMS installed in customized family home built for daughter with Type 1 Spinal Muscular Atrophy
This August the 2nd, Ella Hunt turns 3 years old. For most children turning 3 might not be such a milestone, but it is for Ella who at 4 ½ months old, was diagnosed with type 1 Spinal Muscular Atrophy (SMA). SMA is the number one genetic killer of children under the age of 2. SMA affects the motor neurons of the spinal cord and brain stem. These critically important cells are responsible for supplying electrical and chemical messages to the muscles. Without the proper input from the motor neurons, muscles can’t function properly and begin to atrophy.
It is estimated that SMA occurs in between 1-in-6,000 and 1-in-20,000 births. There are no problems with sensation of the face, arms or legs. Intelligence is unaffected, and in fact many physicians who have worked with hundreds of children with SMA are impressed that these children tend to be unusually alert, interactive and socially gifted. With type 1 SMA, the most severe form of the disease, symptoms are present before the age of six months and these children never acquire the power, the strength and the endurance to sit independently, to crawl or to walk. The greatest threat to the lives of children like Ella are respiratory complications.
That is where Gordon Norquist, local chapter member of the Parrot Heads of Michiana, and a Corporate Officer for American Green Technology® (AGT) has stepped in with an innovative new technology that could make a difference for Ella’s family. “When I met Erica Hunt, Ella’s mother, and she told us her story, I knew immediately that our Health Risk Management System (HRMS) would be a perfect solution to help her family,” said Gordon. “The HRMS is clinically proven to eliminate 99.7% of pathogens and disinfects the air, creating cleaner air for Ella to breathe. AGT was happy to donate the HRMS and be a part of helping the Hunt family and Ella.”
For children afflicted with type 1 SMA, the common cold can be the difference between life and death. Erica was ecstatic when she learned how the HRMS works. “I was thrilled when I first heard about the system. During cold and flu season, we have to be so vigilant. We wear masks, wash our hands constantly and even quarantine our sons Carter and Noah whenever they get the slightest sniffles. This system will allow our family a sense of comfort to know there is an extra layer of protection watching over Ella. Knowing that her time is limited, every day becomes a blessing. We can’t thank the kind and generous people of AGT enough.”
The HRMS works by drawing in contaminated air with fans that push the air through a MERV6 filter, passing it through a UVC chamber which operates at 253.7 nanometers, the ideal range for pathogen elimination. The air is then pushed back out of the system through a set of grills at a 30 degree angle to circulate the clean air throughout the room. In a 10 x 10 room with an 8 foot ceiling, the air is exchanged an average of four times per hour. To learn more about the HRMS log onto arcaluxhrms.com.
For more information about Spinal Muscular Atrophy visit curesma.org.
About American Green Technology: American Green Technology® (AGT) is a company dedicated to developing innovative products to positively impact the health, economy, and environment of global communities. Its ultra-long, energy efficient induction lights dramatically reduce energy and maintenance costs, while simultaneously reducing the carbon footprint of its commercial, government, and industrial clients. AGT’s Health Risk Management System (HRMS) is a patented UVC lighting product clinically proven to eliminate 99.7% of airborne pathogens that cause Healthcare-associated Infections (HAIs) in hospitals and cancer centers. According to the World Health Organization, HAIs are contracted by hundreds of millions of people every year, and AGT’s commitment to this innovation is a shining example of the approach that LIVESTRONG believes can positively impact the lives of the 32.5 million people affected by cancer. AGT supports the LIVESTRONG Foundation’s mission of improving lives of people affected by cancer now. For more information, visit LIVESTRONG.org.