Las Vegas, NV, February 01, 2012 --(PR.com
)-- Acromegaly Community (www.AcromegalyCommunity.com) is an organization dedicated to helping people battling a rare tumor in the pituitary gland.
Dealing with a rare disease can be extremely difficult as a patient, but it can be just as difficult and confusing for the family and loved ones.
In 2011, Acromegaly Community hosted its first ever conference at the Mirage Hotel in Las Vegas, NV. As Community member Sheryl Colstock states, “I was among others who could truly look me in the eyes and say, 'I understand.' I was not alone, I was not losing my mind.” For many patients and loved ones, this was the first time they spent any time with others suffering from the effects of this rare disease. The purpose of this event is to combine information and support so people have some fun as they are empowered.
The upcoming conference, to be hosted at the Red Rock Casino Resort & Spa in Las Vegas, NV, includes presentations from leaders in the field of Neurosurgery and Psychology including Dr. Daniel Kelly, Director of the Brain Tumor Center at John Wayne Cancer Institute at Saint John's Health Center in Santa Monica, CA and Catherine Jonas, LMFT from Cedars-Sinai Medical Center in Los Angeles, CA. We will also have an honored guest speaker from the world of Acromegaly advocacy, Karen Strutynski, mom to patient Tanya Angus, made famous by the show Help, I’m Becoming a Giant!
Scholarships will be available to members in need. Membership in Acromegaly Community, and most of its services are offered to its members for free. Patients, loved ones, and medial professionals are encouraged to join Acromegaly Community, and contribute to the dialogue.
To register for the weekend, see the itinerary, and apply for scholarships, copy and paste the following link: http://us2.campaign-archive2.com/?u=7aafe351792bf4b4245885a73&id=2717d0ce9a
Acromegaly Community's mission is to provide an emotional and communal support network for people touched by Acromegaly. They offer a central location for medical information on issues including surgery, medication, radiation and post diagnosis support. Most importantly, they provide a network of emotional support for Acromegaly patients, their friends and their family.
For more information, please contact:
Wayne Brown, Executive Director, Acromegaly Community
Office: 716.844.8780. Fax: 716.844.8807