First Ever World CP Day September 4th
United Cerebral Palsy of Eastern Connecticut celebrates the first ever World Cerebral Palsy Day on September 4 with a fitness challenge and an opportunity to submit ideas to improve the lives of people with CP. Scott Jones is a client who has been involved with UCPECT since 1994. He never imagined he might climb a mountain but he will be soon as a participant in the fitness challenge.
Participants form teams of four and track their daily steps with a pedometer to climb a virtual mountain. The staff at UCPECT and several clients are participating in the event that kicks off at Poquonock Plains Park in Groton at 10:15 a.m. Other physical activity counts too including bowling, pilates, biking and more than 30 other activities including moving along in a wheelchair, which is where Scott is getting involved. His team is called “3 Cookies and a Chip,” and is made up of UCPECT staff including Jill Frizzola, Nora Sydnor, and Laura Davis. Scott has an electric wheelchair and looks forward to the four week challenge.
“I want to get our name out there,” says Scott. “I want to show people that being in a wheelchair is like having legs.”
He lived in a supported living situation for many years, before moving to a group home and for the past three years, this 51 year old has attended the UCPECT day program. While he enjoys learning arts and crafts in the program, among other things, he is actively involved in the community doing volunteer work at libraries and the local soup kitchen.
Although Scott and the folks at UCPECT are interested in raising money for its Outreach Program through sponsors of the walk, they also want to raise awareness about CP. United Cerebral Palsy is inviting people to submit ideas that when implemented, could make a significant difference in the lives of anyone with the debilitating disease. People can go on line, www.worldcpday.org, to submit their ideas that must be conveyed in one minute, and the best will be chosen by the World Cerebral Palsy Day panel. Then activists, inventors and researchers, can submit how they would make one of the winning ideas, a reality. The best products will be chosen that will make an impact on the lives of folks with CP and funding will be made available to implement the ideas. The theme is called “change my world in one minute.”
And World CP Day will change the world of many people with CP as it increases awareness, raises funds for innovative products and ideas, and makes opportunities available to people through its outreach programs locally.
The fitness challenge begins Sept. 4 and runs until the end of the month. Anyone can support Scott's team by making a donation to "UCP" or form a team by registering at www.us.worldcpchallenge.org. For more information about joining Scott in his mountain climb contact United Cerebral Palsy of Eastern Connecticut at (860) 443-3800.