San Francisco, CA, June 25, 2015 --(PR.com
)-- Seeking assistance from anyone who can, and is willing, to help using Mark2Cure’s website and by building awareness of rare diseases and the gap of information that is a result of the incredible amount of scientific research that we see today.
Imagine what it’s like to have an illness that cannot be cured or treated.
If you can read, you can help.
Mark2Cure is recruiting anyone, of any age, who can read to help in the fight against NGLY-1 deficiency.
NGLY-1 deficiency is an extremely rare genetic disorder with less than 40 known cases worldwide. Due to its rarity, very few biomedical articles have been published specifically about the disorder and there is currently no cure or treatment for it. There are also only a handful of scientists who are devoted to defeating NGLY-1 deficiency.
The few individuals affected by the disorder need help. As you can imagine, they are desperate to find a treatment or cure for the disorder as soon as possible, but resources are finite and the rarity of the disease makes resources even harder to find.
With over 1,000,000 new scientific articles being published each year, and our individual ability to read a certain amount remaining virtually the same, there is a very profound gap in connected research and therefore knowledge among scientists. If that gap potentially be bridged, scientists could potentially use each others findings to find out more about, and at a possibly faster rate, diseases that we have yet to cure.
The problem: There is too much information to be analyzed by too few researchers and there is limited time to find the information that could lead to a cure for those affected. The time factor is a huge problem as the deficiency is hurting those affected every single day that there is no treatment or cure.
The solution: Seek assistance from anyone who can, and is willing, to help using Mark2Cure’s website and by building awareness of both NGLY-1 and the gap of information that is a result of the incredible amount of scientific research that we see today.
Therefore, if you can read, you can help. If you can read and understand the words on this page, then you can be an effective helper in tackling the issue of NGLY-1 deficiency. All it takes to participate in this potentially life-saving discovery process is the ability to read and analyze words.
At first glance, the idea of helping scientists analyze biomedical research articles may come across as a bit overwhelming, especially to someone who may not have any type of background or knowledge of science.
The great thing about Mark2Cure is that it allows anyone who can read and use the basic functions of a computer to help, because of the simple yet effective design of its discovery process.
All you need is the ability to read and analyze words, and a computer.
Going on the website (mark2cure.org) and clicking the “I want to help button” is the easiest and fastest way to understand how it is you can actually help. After completing the tutorial, which is quite short and all-encompassing, you will understand how exactly you will be helping.
Even just a few minutes of annotating a day has a chance of making a difference. Please don’t hesitate today.
For more information:
The Su Lab: Sulab.org
NGLY1 Foundation: NGLY1.org
Photos, videos, and potential interviewee contacts are available upon request.