Boca Raton, FL, November 13, 2017 --(PR.com
)-- Patronus Health, a consumer healthcare advocacy technology company, today announced that founder and CEO Mandy Long has been appointed to the Turner Syndrome Society of the United States (TSSUS) Board of Directors.
Long, named one of 2017’s Most Powerful Women in Healthcare IT, joins a board that includes physicians, patients, and business leaders who serve the TSSUS organization and its mission of providing health-related resources to patients, families, and physicians for the diagnosis and treatment of Turner Syndrome.
“I am honored to join the prestigious board of professionals who support TSSUS to help raise awareness and advocate for the needs of Turner Syndrome patients and their families,” said Long. “I know first-hand the impact of this lesser-known, rare disease and am pleased to have a more active role aiding TSSUS and those the society serves.”
Long’s three-year-old daughter was diagnosed with Turner Syndrome, a chromosomal condition, although not generally inherited, that affects females and both their physical and emotional health. The degree of severity and symptoms vary from patient to patient and can alter development. With proper medical care, education, and support, girls and women can lead normal, happy lives.
“Specialized medical care is essential and can be costly,” said Long, “and extends throughout the life of a young girl and into adulthood. The sooner a child is diagnosed, the better, which is why awareness is so important.”
The experience of needing consistent medical care for her daughter and sifting through the constant stream of medical bills led to founding Patronus Health. The company’s goal is to work for better transparency, fair pricing and accountability in the healthcare system by using technology and the support of advocates to reduce medical bills and debt.
Patients or their caregivers may contact Patronus Health to learn more at firstname.lastname@example.org.
About Patronus Health
Patronus Health, LCC (www.patronushealth.co) is a consumer healthcare advocacy technology company that empowers and supports consumers navigating the healthcare system to ensure fair costs and reduce debt. The company’s technology and network of advocates provide assistance to individuals and to enterprise businesses to help decrease healthcare spending.
About Turner Syndrome Society of the United States
The Turner Syndrome Society of the United States (TSSUS) is a national 501(c)(3) nonprofit organization whose mission is to advance knowledge, facilitate research, and provide support for all those touched by Turner syndrome. TSSUS is funded by the generosity of corporate, individual, and foundation donors.
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