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Sudden Arrhythmia Death Syndromes (SADS)...

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The SADS Foundation announces its winners for the 6th Annual Courts K. Cleveland SADS Foundation Young Investigator Awards in Cardiac Channelopathies. The winners are: Basic Science Winner - Author/Investigator: David Auerbach, PhD Mentor: Lori Isom, MD, Ph.D. Institution: University of Michigan; Translational/Clinical Winner - Author/Investigator: Christian Van Der Werf, M.D., Ph.D. Mentor: Arthur Wilde, M.D., PhD, Institution: Academic Medical Center Amsterdam - May 09, 2013
Highlights from one of October's biggest events in Utah. - October 20, 2012
Current guidelines disqualify most LQTS patients from almost every sport. In a first-of-its-kind study, Mayo Clinic’s LQTS Clinic recently examined its own experience, determining the outcome of LQTS patients who chose to remain athletes against guideline recommendations. The study is published online in the Journal of the American Medical Association. - July 29, 2012
The Sudden Arrhythmia Death Syndromes (SADS) Foundation releases its fourth video for “Heart of the Matter - Ask the Experts.” The SADS Foundation, in partnership with the Mayo Clinic presents monthly videos answering questions from real people with Long QT and SADS conditions of world-leaders in these conditions. - July 22, 2012
The Sudden Arrhythmia Death Syndromes (SADS) Foundation was thrilled to partner with Pediatric and Congenital Electrophysiology Society (PACES) to sponsor the PACES Boston Symposium on Tuesday, May 8, 2012 in Boston, MA. - May 11, 2012
The Sudden Arrhythmia Death Syndromes (SADS) Foundation announced its winners for the 5th Annual Courts L. Cleveland SADS Foundation Young Investigator Awards in Cardiac Channelopathies. These Awards were administered by the Pediatric and Congenital Electrophysiology Society (PACES) and were presented at the annual PACES evening meeting on Wednesday, May 9, 2012 by Dr. Charles Berul, Chair of the Committee and PACES President for Research. - May 11, 2012
The Sudden Arrhythmia Death Syndromes (SADS) Foundation launched "Flat Bob" at the 2012 Heart Rhythm Society meeting, a campaign designed to increase awareness and education for Long QT and other SADS conditions in children and young adults. “Flat Bob” serves as a symbol of compassion and friendship for raising awareness of SADS conditions and having families share their stories around the world. - May 11, 2012
The Sudden Arrhythmia Death Syndromes (SADS) Foundation has teamed up with Mayo Clinic to launch the ground-breaking program of “The Heart of the Matter – Ask the Experts." This resource serves as a crucial tool for worldwide professionals and community members to share their expertise and concerns on heart rhythm abnormalities that could cause sudden death in children and young adults - May 11, 2012
The Sudden Arrhythmia Death Syndromes (SADS) Foundation, in partnership with Heart Rhythm Society (HRS), Sudden Cardiac Arrest Association (SCAA) and Mended hearts are coming together Saturday, May 12, 2012, for a Family Seminar in Boston, MA at the Boston Conference Center. - May 11, 2012
Although Timothy Syndrome is a rare disease, a number of new families affected by Timothy Syndrome contacted the SADS Foundation this year. An awareness campaign designed for anesthesiologists, pediatricians, cardiologists and neurologists is underway. Anesthesia is a known trigger of arrhythmias in Timothy Sydrome, therefore if surgical intervention is required for cardiac repair, extreme care in anesthesia selection and cardiac monitoring is essential to survival. - May 11, 2012
The SADS Foundation, in conjunction with the Mayo Clinic, is delighted to announce the launch of the ground-breaking program: “The Heart of the Matter – Ask the Experts." This innovative program features questions regarding Long QT syndrome and other SADS conditions, with answers from... - March 08, 2012
Learn about the causes of sudden cardiac arrest in youth and what you can do to help a child in need. - February 09, 2012
Carol Meyer Willingham, of Salado, will sing in solo recital Sunday, February 12, 2012, at 7:00 PM as part of the Caliber Oak Chapel Music Series to benefit SADS, an organization that promotes awareness and research of Sudden Arrhythmia Death Syndromes. The performance is in memory of Carol's nephew,... - January 22, 2012
The SADS Foundation won their second $18,000 charitable donation in the State farm Go To Bat program. - October 15, 2011
The Sudden Arrhythmia Death Syndromes Foundation (SADS) will host their 5th International Conference in Atlanta October 1st and 2nd. - September 29, 2011
Triathlon event in Rock Hill South Carolina. This event is in honor of Abbey Wambach, who died at the age of 10 due to complications related to a SADS condition. The event will benefit the SADS (Sudden Arrhythmia Death Syndromes) foundation. - September 24, 2011
The 4th Annual SADS Foundation Young Investigator Awards in Cardiac Channelopathies will be administered by the Pediatric and Congenital EP Society (PACES), and were presented at the annual PACES evening meeting, Wednesday, May 4, 2011 by Dr. Charles Berul, Chair of the Committee and PACES Vice President for Research. The Presentation was made as part of the Heart Rhythm Society Conference. - May 07, 2011
As part of the Heart Rhythm Society Conference in San Francisco, CA this week, the SADS Foundation announces a partnership with PACES (Pediatric & Congenital Electrophysiology Society) and has invited PACES’ President, Peter Fischbach, MD. to serve on the Board of Directors. - May 07, 2011
In light of the recent tragic deaths of 17 year old Wes Leonard in Michigan, and 16 year old Matthew Hammerdorfer in Colorado, the SADS (Sudden Arrhythmia Death Syndromes) Foundation strongly recommends that AEDs (automated external defibrillators) be present at sporting events, community centers and... - March 11, 2011
The SADS (Sudden Arrhythmia Death Syndromes) Foundation has been awarded a $50,000 Patient Link grant from the Medtronic Foundation for the "Keeping Hearts Beating" Outreach and Awareness Campaign. This life-saving campaign will allow the SADS Foundation to distribute awareness materials throughout... - March 09, 2011
The SADS (Sudden Arrhythmia Death Syndromes) Foundation, founded in 1991 in Salt Lake City, UT, commends the Salt Lake International Airport on this prestigious accreditation. Quick response in the case of sudden cardiac arrest, especially with the use of an AED (automated external defibrillator), can... - January 22, 2011
The Sudden Cardiac Arrest Coalition is issuing a call to action to urge congress to: 1) make sudden cardiac arrest a reportable condition 2) include CPR in high curricula and 3) join the congressional heart and stroke coalition. - January 15, 2011
The Sudden Arrhythmia Death Syndromes (SADS) Foundation is thrilled to partner with the Spokane Mountaineers Club in the Fourth Annual Climb to Conquer SADS this weekend at Mt. Rainier, Washington. Right now, 12 experienced and dedicated climbers are gathering at the 'base camp' at the foot of Mt. Rainier. - July 09, 2010
Ever wonder what you would do if a loved one died unexpectedly? Meet Bob DeVries. On September 10, 2008, Bob’s wife, Shawn Marie DeVries, passed away from Arrhythmogenic Right Ventricular Dysplasia (ARVD). She was only 35. Bob is on a quest to raise awareness of genetic heart arrhythmias that can cause sudden cardiac death in young people by attending one game at all 30 Major League Ballparks in one season. The second half of his quest begins June 21st. - June 24, 2010
Each year in the United States, an estimated 4,000 young people die suddenly and unexpectedly due to cardiac arrhythmias. Most of these deaths are preventable. - February 11, 2010
"My experience with the SADS Foundation has always been beneficial, but in different ways over the past 2 ½ years. It began with a phone call I made searching for answers after the sudden and unexpected death of my healthy fifteen year old son, Brian. With the help of the SADS Foundation the mystery unraveled. Now I am able to impact the education of others about Long QT Syndrome which is why I organized an annual fundraising event." - Kathy Martin - February 10, 2010
Research findings indicate that Long QT Syndrome (LQTS) affects females by a ratio of 10 to 1. This discrepancy is likely caused by hormones that affect the IKr Channel. Further, during puberty, the QT interval in boys shortens, leaving adult women with a longer QT interval than adult men. In the congenital... - January 29, 2010
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