Raleigh, NC, March 21, 2010 --(PR.com
)-- Congenital Diaphragmatic Hernia (CDH) affects 1 in every 2500 babies, representing approximately 1600 babies in the United States each year and over 600,000 babies since the year 2000 - half of which do not survive. Some of the surviving babies, like Torrence’s son, who only lived until the age of 6, end up suffering through life with lasting health problems such as feeding aversions, gastrointestinal problems, asthma, allergies, scoliosis, pulmonary hypertension or other long-term pulmonary problems.
There are more children born each year with CDH than there are children born with Cystic Fibrosis or Spina Bifida, and although there is no known cure or typical treatment, there is still a significant lack of research and awareness in the public and medical communities about CDH. “Once a child come homes, it is not uncommon for a parent of a child with CDH to have to explain the birth defect to their pediatrician or general practitioner. When the medical community is not that aware of something as common as CDH, it makes it almost impossible to raise public awareness but we are determined to change that." says the President of CHERUBS, Dawn Williamson.
CHERUBS is indeed determined. Founded in 1995 by Mrs. Williamson, CHERUBS is the world’s first and largest Congenital Diaphragmatic Hernia (CDH) organization with over 3000 members in 38 different countries and all 50 states.In addition to all of their other services and projects, they have taken on a national campaign to catch the attention of the public. In their new "Save the Cherubs" campaign, the charity is working with photographers and families around the country to capture these children and the affects of CDH on camera.
"The mission of 'Save the Cherubs' is to make Congenital Diaphragmatic Hernia a phrase everyone knows how to say and everyone knows the meaning of. Our campaign is a media blitz using photos of the kids dressed as cherubs (street clothes with wings) in photos doing real life things to emphasize that these kids are real… they exist, they could be on the playground playing with your kids. They could be the children of the people you shop beside or the baby your neighbor lost but no one knows because there is no awareness!"
The charity seems to have no shortage of photographers and models and hope that the media and marketing worlds will join in as well. "We are raising money to try to pay for billboard advertisements, magazine ads and newspaper ads. Our members are all joining it to contact marketing companies to see if they will donate space to help raise awareness. Local newspapers, television stations and magazines through the country are also joining in and covering our campaign photo shoots. This truly is a group effort of CDH families, photographers, the media, marketing companies and CHERUBS and we really believe that through this campaign we will have the opportunity to inform millions of people about CDH. It is a momentous event because this is the biggest CDH Awareness project ever created."
"By raising awareness, we hope to raise research funds to save these babies - Save the Cherubs." said Williamson. “There is still so much research that needs to be done and so many babies that need to be saved.”
"We will keep fighting, keep researching and keep raising awareness until the cause and prevention of CDH is found. We work toward saving babies in the future and honoring those we have already lost. CHERUBS wants to be able to help as many families as possible, because we understand the hurt and confusion that comes along with having a child with CDH. We want to spare other families from the devastating effects of CDH so that more babies are lost to this birth defect. To have more research funds, we need more awareness."
If you would like to join in on this campaign or make a donation to help further their efforts, you can reach CHERUBS through the campaign web site at www.savethecherubs.org