The National Down Syndrome Society (NDSS) and Its Partner Lettercase Celebrate the National Distribution of a New Down Syndrome Prenatal Booklet

NDSS Provides Funding for Revision of Lettercase Booklets Making Accurate, Up-to-Date, and Balanced Prenatal Information Available for Medical Professionals and Families.

New York, NY, January 31, 2011 --( The National Down Syndrome Society has joined forces with Lettercase, an independent non-profit clearinghouse of information about genetic conditions, in an effort to ensure that expectant couples learning about a diagnosis of Down syndrome receive accurate up-to-date and balanced prenatal information. An updated edition of the prenatal booklet titled, Understanding a Down Syndrome Diagnosis, will be available on January 31, 2011, including a nationwide distribution of 10,000 complimentary copies funded by the National Down Syndrome Society and the Joseph P. Kennedy Foundation.

The revised booklets were created with input and consensus from both the medical and Down syndrome communities, including the American College of Medical Genetics, the American Congress of Obstetricians and Gynecologists, the National Society of Genetic Counselors, the National Down Syndrome Congress, and, of course, the National Down Syndrome Society.

Since 2006, NDSS has been at the national forefront of the effort to provide reliable information to physicians and medical experts about the capabilities and achievements of people with Down syndrome. Through a generous donation from the Joseph P. Kennedy Jr. Foundation, NDSS was able to focus efforts on the ever-changing landscape of prenatal testing, specifically regarding the type and quality of educational materials about Down syndrome available to medical professionals.

To complete this process, NDSS has awarded the funding to Lettercase to allow for the update, production and distribution of the first round of revised booklets. The initial goal is to distribute 10,000 booklets to the medical community, legislators, and local Down syndrome organizations through conferences, medical journals, and other forums. The ultimate goal is to have physicians and other medical professionals distribute quality information about Down syndrome to the 4.1 million women who will be offered prenatal testing annually.

NDSS is proud to have spearheaded an initiative of such compelling urgency and importance to the entire Down syndrome community. “Our goal has been to create and seize any opportunity to supply accurate information to medical professionals, pregnant women and their families, and community members at large. Through collaboration with Lettercase, the opportunity arose, and now the goal will be realized,” states Jon Colman, President of NDSS. This initial printing and distribution of the revised Understanding a Down Syndrome Diagnosis will reach medical geneticists, genetic counselors, and obstetric medical providers across the country.

About NDSS
The National Down Syndrome Society is a nonprofit organization representing the more than 400,000 Americans with Down syndrome. The mission of NDSS is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity enhance their quality of life, realize their life aspirations, and become valued members of welcoming community. NDSS has over 275 affiliates nationwide. To learn more, visit

About Lettercase
Lettercase is an independent, nonprofit organization that values dependable information. It is also the exclusive distributor for Understanding a Down Syndrome Diagnosis, created by Canister. Lettercase’s mission to teach the public about genetic conditions is grounded in a solid approach for accuracy and respect for the medical community. To learn more, visit

Lettercase. Inc.
Stephanie Meredith