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DysNet Limb Difference Network

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DysNet Chairman, Geoff Adams-Spink, Appointed to Board of Disability Rights UK


Thalidomide survivor and chairman of network for people with limb differences to work with leading UK disability charity.

London, United Kingdom, May 30, 2012 --(PR.com)-- DysNet, the newly-launched limb difference network, is delighted to announce that its chairman, Geoff Adams-Spink, has been appointed to the board of Disability Rights UK.

Mr Adams-Spink leads both DysNet and its European NGO parent EDRIC (European Dysmelia Reference Information Centre).

DysNet has been launched to bring together the world’s congenital limb difference (Dysmelia) groups and organisations, to share information and resources on a global level. This week also saw the launch of the DysNet RareConnect community forum under the auspices of EURORDIS and NORD, the world’s leading rare diseases organisations.

Disability Rights UK, was formed at the start of 2012 through a unification of Disability Alliance, Radar and National Centre for Independent Living. It aims to be the largest national pan-disability organisation led by disabled people. Disabled people make up at least three-quarters of its board members.
Mr Adams-Spink is a former BBC disability correspondent and a survivor of the morning sickness drug, Thalidomide. Women who took the drug for morning sickness while pregnant, gave birth to children with shortened or missing limbs and other disabilities. Thalidomiders are this year marking the fiftieth anniversary of the withdrawal of the drug.

Mr Adams Spink said, “I am delighted to be joining the Disability Rights UK board. There are many important issues being faced by people with disabilities in the current climate and DRUK has a strong voice to campaign on their behalf. I believe our work at DysNet for people with limb differences with be enhanced and strengthened by this new link.”

Disability Rights UK focuses on promoting meaningful, independent living for disabled people as well as breaking the link between disability and poverty. It also campaigns for disability equality and human rights.

You can find the Disability Rights UK website at http://www.disabilityrightsuk.org and the DysNet website at http://www.dysnet.org

Editors’ Notes:

For more information, please contact DysNet PR, Tania Tirraoro at Tania.tirraoro@dysnet.org or on 07828 140708.

Geoff Adams-Spink is available for interview. To access high-res photographs or logos, please get in touch.

EURORDIS is the European Rare Disease Organisation at www.eurordis.org, of which EDRIC is a member.
Contact Information
DysNet
Tania Tirraoro
+447828 140708
Contact
www.DysNet.org

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