Milford, CT, September 24, 2015 --(PR.com
)-- Produced by The Morgan Leary Vaughan Fund, and funded by The Petit Family Foundation, Speaking of NEC is a series of one-on-one conversations with relevant Necrotizing Enterocolitis (NEC) experts - neonatologists, clinicians and researchers - that highlights current prevention, diagnosis, and treatment strategies for NEC, and the search for a cure. During the episode, Jennifer and Samir share the findings from the NEC Society’s survey aimed at characterizing parent perceptions of the practices and events related to their child’s development of NEC. They discuss:
· The design and development of the NEC Society’s online, international survey - research specifically focused on parents and their perspectives on NEC,
· The survey’s five areas of interest: education, awareness, support of human milk, information provided and information providers, and parental empowerment in the NICU
· The survey findings including the demographics of the participants and their babies—all of whom were diagnosed with NEC,
· The importance of raising awareness about NEC in the general public,
· The NEC Society’s partnership with the Best for Babes Foundation® and the Miracle MilkTM Stroll, and
· The NEC Society’s recently announced conference, Necrotizing Enterocolitis Symposium: A Transdisciplinary Approach to Improved NEC Outcomes, in partnership with the University of California at Davis, and set for 2017.
Episode 7 launches on Monday, September 28, 2015 at noon EDT, and will be available to listen to, or download, at www.morgansfund.org/speaking-of-nec-episode-7 or on iTunes.
This episode was produced in part by the TeacherCast Educational Broadcasting Network. For more information about Speaking of NEC or The Morgan Leary Vaughan Fund, visit morgansfund.org.
About The Morgan Leary Vaughan Fund, Inc.
The Morgan Leary Vaughan Fund (Morgan’s Fund) is an all-volunteer, public charity dedicated to Necrotizing Enterocolitis (NEC). Its mission is to promote public awareness about NEC and the potentially devastating effects it can have on preemies and their families, and to advance research to prevent, diagnose, treat, and ultimately, cure NEC. Named after Morgan, it celebrates his survival, courage and strength.
Morgan and his twin brother were born at 28 weeks, one day gestation - nearly three months early - each weighing less than 2.5 pounds. At four days old, Morgan developed NEC and lost approximately 20% of his small intestine. Morgan not only survived but has also thrived since his bout with NEC. This is his family’s way of paying it forward.
About The Petit Family Foundation
The Petit Family Foundation honors the memories of Jennifer Hawke-Petit, Hayley Elizabeth Petit and Michaela Rose Petit by continuing the kindness, idealism and activism that defined their lives. The Foundation’s funds are given to foster the education of young people, especially women in the sciences; to improve the lives of those affected by chronic illnesses; and to support efforts to protect and help those affected by violence.
About the NEC Society
The NEC Society is a non-profit, tax-exempt, 501c3 organization, made up of a diverse group of healthcare practitioners, researchers, and families from across the country who seek to protect premature infants from Necrotizing Enterocolitis.
Necrotizing Enterocolitis (NEC) is a devastating intestinal disease that affects thousands of premature infants every year in the United States. Through education, outreach, research, and advocacy, we are committed to reducing the incidence of Necrotizing Enterocolitis.